James Lind Alliance
The online survey is now open.
Click here to access the survey
The full protocol for the BOFAS James Lind Alliance can be found here as a pdf
Our partnership brings together those affected by including patients, carers and clinicians to decide what research to focus on next.
We are forming a partnership involving patients, carers, charities, healthcare professionals and researchers to find out what is important in foot and ankle research for the most important people - those affected by foot and ankle problems. Help us by completing our survey, promoting this research and sharing the results.
The importance of involving those directly affected by a condition in identifying research priorities to ensure the findings are relevant is increasingly being recognised. The aim of this project is determine a 'top ten' list of research priorities for patients with foot and ankle problems.
BOFAS and the James Lind Alliance are working together to establish a Priority Setting Partnership (PSP) following the methods set out by the James Lind Alliance
The steering group includes those affected by foot and ankle problems including patients, carers and clinicians involved directly in care of patients with problems in the foot or ankle. An initial online survey will determine what the priorities for foot and ankle research should be. The members of the steering group will promote the survey through their ‘wider partner networks’ which include patient groups, healthcare clinics and through relevant websites.
The survey results will be checked against what is already known about treatment of foot and ankle conditions to see where there are gaps in knowledge. Priorities will then be sorted to generate a short list for discussion at a final workshop where a ‘Top 10’ priority list will be agreed. These priorities will be used by researchers to apply for funding to undertake projects which could improve care for patients with foot and ankle problems in the future.
The scope of the Foot & Ankle Surgery PSP is defined as:
- Surgical treatments and injections for the treatment of foot & ankle conditions and injuries in adults (over 18 years)
- Post surgical rehabilitation or injection aftercare.
Jitendra MANGWANI – PSP Lead
Jitendra Mangwani is a Consultant Orthopaedic Foot and Ankle Surgeon at University Hospitals of Leicester. He graduated in India and completed his higher surgical training in trauma and orthopaedics in London with a specialist fellowship in foot and ankle surgery. He has a keen research interest. He is committed to medical education and is regularly invited as a faculty to courses and conferences. He runs both national and international foot and ankle surgery courses. He is a member of the Scientific Committee and in this role is co-opted on the Outcomes Committee
Katherine COWAN – Senior Advisor James Lind Alliance
Katherine chairs the Steering Group. She is Senior Adviser to the JLA and has been a key contributor to the development of its methods and profile since 2008. Katherine co-wrote and edited the original JLA Guidebook. She has chaired over 40 PSPs and facilitated at almost 50 priority setting workshops internationally. Katherine’s professional background is in social research and she has a particular interest in public participation and inclusion. She has a Masters in Coaching and Mentoring Practice and has worked as an independent facilitator for 12 years.
Patricia ALLEN - Clinician
Patricia Allen is a Consultant Orthopaedic Foot and Ankle Surgeon at University Hospitals of Leicester and the Immediate President of British Orthopaedic Foot and Ankle Society. She trained in Birmingham and Bristol and undertook Fellowship training in Dublin before being appointed Consultant in Bristol in 2000. She moved to Leicester in 2003 to set up the Foot and Ankle unit there.
Noelene DAVEY - Clinician
BSc (Physiotherapy), University of Sydney (graduated 1995), HCPC registered and CSP Chartered Physiotherapist
Noelene and has gained a wide variety of experience in musculoskeletal physiotherapy both in Australia and the UK. She is currently an Advanced Physiotherapy Practitioner at Imperial College Healthcare NHS Trust, working alongside consultant orthopaedic surgeons and leads the physiotherapy department in delivering the best evidence based management of lower limb conditions. She is regularly invited to lecture at national and international conferences and is research active within her NHS role and is a Founding Trustee and Chair of educational charity Association of Foot & Ankle Physios & AHPs.
Mark B DAVIES - Clinician
Consultant Orthopaedic Foot & Ankle surgeon in Sheffield. Demonstrable commitment to research, audit and education. Honorary Secretary of BOFAS.
Nick GALLOGLY - Clinician
Nick Gallogly is a consultant orthotist and orthotic clinical lead for the Royal Berkshire Foundation Trust Hospital. His background includes a BEng in Medical Mechanical Engineering, a BSc in Prosthetics and Orthotics and an MSc in Clinical Biomechanics. Nick works within busy foot and ankle clinics and is a member of many MDT clinics including diabetic and both adult and paediatric neuromuscular clinics. He works with elite athletes which include premiership ruby and premier league football and GB rowing.
Douglas GRINDLAY - Information Specialist
Dr Douglas Grindlay is the information specialist in the Orthopaedics and Trauma Group at the University of Nottingham. Douglas is involved in systematic reviews and database searching, and compiles several current awareness services, including Foot and Ankle Evidence Updates: https://www.jiscmail.ac.uk/FOOT-AND-ANKLE-EVIDENCE-UPDATES. He has been a steering group member for several previous PSPs, including the PSP on Common Conditions of the Hand and Wrist, and has a particular interest in using systematic reviews and guidelines to identify research uncertainties.
Melinda HAU - Information Specialist
Miss Melinda Hau is a Trauma and Orthopaedics Trainee Registrar in East Midlands South. She graduated from University of Leicester in 2011 and did all her training in East Midlands. She has an interest in Foot and Ankle and Orthoplastic Surgery.
Steve INGRAM – Patient Carer
I am the main carer for my disabled wife. She had a Stroke in 2010 and was left with right sided paralysis and aphasia. I took early retirement in 2016 to look after her. I served in the RAF for six years, taught in secondary schools for sixteen years and was the Teaching Support Officer at Imperial College London for fourteen years.
Rebecca KEARNEY - Clinician
Dr Kearney is a clinical academic physiotherapist, senior NIHR Fellow award holder and Associate Director of Warwick Clinical Trials Unit. She leads the design and delivery of research programmes that evaluate the clinical and cost effectiveness of interventions in the area of trauma and orthopaedic rehabilitation.
Lyndon MASON - Clinician
I work as a consultant in foot and ankle, trauma and major trauma at Aintree University Hospital, and as the musculoskeletal system lead at the School of medicine, University of Liverpool. I have co-led on foot and ankle research for which we have received both national and international recognition. I was involved in the JLA priority setting for Major Trauma in 2017.
Jo MILLARD – PSP Co-ordinator
Jo Millard is Secretariat for the British Orthopaedic Foot & Ankle Society. Her role is wide ranging and sees her working alongside the Education Committee, organising and running 5 UK training courses and 2 International training courses each year; with Scientific Committee, as PSP co-ordinator on the BOFAS Foot & Ankle Surgery PSP; and Outcome Committee, as Data Protection Officer. Jo also works closely with the BOFAS Treasurer on the society accounts in addition to organising the main Annual Scientific Meeting each year with the Society President.
Veena PATEL - Clinician
MBBS, MEd, MRCP(UK), MRCP(Rheum), FHEA
I work as a Consultant Rheumatologist at Leicester with a special interest in Osteoporosis and Metabolic Bone diseases. I have experience in managing wide range of patients with primary/secondary osteoporosis, osteomalacia, Paget’s disease, osteogenesis-imperfecta, hypophosphatasia etc. I have the experience of managing fracture liaison service and contributed in developing many related guidelines and pathways. My other interest is in medical education and have completed MEd from University of Birmingham. I am a Fellow of Higher Education Academy and contribute to UG/PG teaching locally as well at Royal College/Arthritis UK. I have experience in conducting qualitative research and have published in peer reviewed journals.
Amanda ROBERTS - Patient
Amanda is an experienced lay member of health related committees. She is passionate about patient and public involvement. She has been on a couple of JLA PSP steering groups before (eczema and retention). She has had foot surgery and two years ago she broke her ankle.
Brigitte SCAMMELL - Clinician
Brigitte Scammell is a Consultant Orthopaedic Surgeon in adult foot and ankle surgery at The City Hospital, Nottingham and Professor of Orthopaedic Sciences at the University of Nottingham. She heads the Academic Orthopaedic Unit and is the Admissions Sub-Dean for the Faculty of Medicine. Her clinical interests are in adult orthopaedics, especially of the foot and ankle, with a particular emphasis on the reconstruction of severe deformity and treatment of infection in patients with diabetic foot disorders.
Lauren THOMSON – Information Specialist
I am a current training registrar within the East Midlands South Deanery with an interest in foot and ankle surgery. A keen advocate for education I see the James Lind Alliance as an excellent conduit for understanding between both the professional and the patient.
How The James Lind Alliance Process Works
STAGE 1 - ESTABLISHING THE FOOT AND ANKLE PARTNERSHIP
A Steering Group is formed, bringing together patients, carers, charities, healthcare professionals and research experts. The steering group agree a protocol for the project, outlining what will happen and when. They also agree on management arrangements and identify further partners to reach as wide an audience as possible.
STAGE 2 – YOU SHARE YOUR VIEWS
No one understands foot and ankle problems better than the people who live with the condition or their families. The Steering Group will create a survey, using the James Lind Alliance guidance, to help understand which research questions these people as well as clinicians think are important to answer.
STAGE 3 - DATA MANAGEMENT
The project data management group will gather up all the survey results and sort the answers intoresearch questions and themes. We will review what existing research is already done that might be able to answer some of the questions and prioritise questions where there is a lack of evidence.
STAGE 4 - INTERIM PRIORITISATION
To check we've got the right message, the research questions we've created will be sent to survey respondents and partner organisations. Respondents will be asked to rank their top 10 unanswered questions and these will be combined to create a final shortlist.
STAGE 5 - FINAL PRIORITISATION
At the end of the process we will hold a workshop for those who have taken part and partner organisations. This will be a platform to promote the agreed final list of the top ten unanswered research questions. We will share these results as widely as possible to help them guide future foot and ankle research.